Bianca's Tips & Tricks
Hello! Bianca here!
Some things are common to all MINPP1 children and others are only linked to my own specific genetic mutation locations and expression. However, it is always good to know what works for me! These are in no way a prescription or supposed to work on any child other than me:
- Like many hypotonic kids I love pool therapy
- Like many visual impaired kids I love music
- I have good health and energy when I take Liposomal Glutathione
- Toadix Immunoglukan always improve my health when I have a cough or a cold
- I have good energy when I take B12
- The best source of DHA for me: Phosphatidyl Choline (PC). It helps both my neuro genesis but also protect my cells against oxidative stress due to MINPP1 excessive IP6 levels.
- Like many children with genetic diseases, my seizure control treatment is an association between 3 different medicines. As always, up to each child to find its right molecule association. Our suggestion is to liaise with a neuro-pediatrician who knows genetic diseases impacting the brain and who works with many different medications.
- I feel comfy in my Lecky chair for feeding
- I had cataract (thick and rubbery) which built up from 2yo to 4yo
- I have defeated my Moro reflex with sudden sounds
- I love swings and vibrations
All the best in your journey.
Bianca