About us

We are a French-Belgian family based in Dubai, in the United Arab Emirates. We are both entrepreneurs working in fashion. Our daughter Bianca was born in 2018. Her favorite foods are lasagna and raspberries. She is very funny and loves listening to music (or anyone singing). She likes going to the park to be on the swing! Bianca has a double mutation on the MINPP1 gene. 

Our path to her diagnosis lasted more than 4 years. It led to emotional up and downs. We do not want any parent to experience the same, this is why this website was created. 

By sharing and collaborating, we will improve our clinical understanding of MINPP1 kids and offer them a better development. Ultimately, we will raise funds, drive research and find the cure!